Note: This study is currently only recruiting patients in the hospital.

If you are interested in being notified if this study begins recruiting from the general population, please use the 'I Am Interested' button below.

Do you have MS?

In this study, we aim to depict the impact of social determinants of health on people living with multiple sclerosis.

Massachusetts General Hospital Multiple Sclerosis
2 hours over 1 session
Estimated Time Commitment
Any Sex/Gender, 18-years or older
May Be Eligible
Payment up to $160
May Be Offered
Survey, Group discussion (e.g., focus group)
May Be Required
 
I Am Interested I Am Interested I Am Interested

This project is not recruiting.

Overview

What we are studying

In this study, we aim to depict the impact of social determinants of health on people living with multiple sclerosis in the USA. 


Why it is important

To date, the multiple sclerosis field has concentrated on individual risk factors in multiple sclerosis. Race, gender, or region may have heterogeneity and not fully reflect social determinants of health. If multiple social determinants of health could be studied, measured, and combined, they may become important in understanding disease outcomes such as multiple sclerosis relapse incidence, disability status, patient-reported quality of life, and even survival. 


What we hope to accomplish

To determine the key variables of interest and relevance for a social determinants of health index for people living with multiple sclerosis in the U.S. using mixed methods including patient and caregiver focus groups, operationalization of social determinants of health variables, and MS patient and caregiver feedback. 

Principal Investigator

Farrah J Mateen, MD, PhD

Massachusetts General Hospital

Public Profile

Who can participate

We are looking for people who are over the age of 18 years and have a clinical diagnosis of multiple sclerosis or are a caregiver in the USA. 

What you may be asked to do

In this focus group, you will be asked to complete a brief survey and participate in a discussion, all of which is estimated to take about 2.5 hours. This survey will ask you about your multiple sclerosis, social determinants of health, and barriers to care. 


Project activities may include:

  • Survey
  • Group discussion (e.g., focus group)

Estimated Time Commitment

2 hours over 1 session

What You May Get

You will receive $160 for participating in this focus group. 

Location


Travel

  • No travel required

Travel and Parking Details

Additional Information

Participating Institutions


Funding Source

  • Industry
Top